Please Help Me Walk Off Parkinson's
Once again this year I’m writing to raise awareness and support for those living with Parkinson’s Disease, the second most-often diagnosed neurological condition that at least 30,000 people in the Washington, D.C. area alone are learning to live with until a cure is found.
Parkinson’s disease is mysterious. No one knows for sure what causes it or what cures it even though it was identified and defined at least 150 years ago. It does not affect everyone in the same way. People with Parkinson’s live as along as those who live without it and can continue to lead active, constructive lives if given the tools to do so. That’s why it’s so important to make sure those tools are available to all who need them. The Parkinson’s Foundation of the National Capital Area – also known as PFNCA – was founded over ten years ago by neurologists, patients and families of patients for that specific purpose.
If I were given three wishes by a genie in a bottle, I would first wish that every person in the National Capital Area who is diagnosed with Parkinson’s Disease would have a “Recently Diagnosed” group to attend. Being a member of a group of people with similar medical challenges can help everyone in the group cope with those challenges, hope for effective treatments, and celebrate new breakthroughs. PFNCA helps to fulfill this wish by sponsoring an ever-expanding number of these groups to serve the need in our area.
My second wish would be for everyone living with Parkinson’s to have the means necessary to focus on daily physical exercise. The experience of so many living with this disease confirms that exercise lessens and postpones its symptoms. PFNCA offers an ever-widening array of exercise classes to improve balance and flexibility and to promote stronger vocal chords and muscle tone. General exercise, boxing, rowing, yoga, singing, and communication classes are offered throughout the region as funding permits.
My third wish would be that those living with Parkinson’s and their caregivers have the means of obtaining current, dependable information on the disease. Internet articles abound, but are often of questionable value. PFNCA sponsors a seminar each year in March, hosts a lecture series throughout the year, and distributes a quarterly newsletter to meet this need. Researchers, doctors specializing in motion disorders, and therapists update participants on recent breakthroughs and treatments through these forums.
Individuals are newly diagnosed with Parkinson’s Disease each day, leaving PFNCA with an ever-growing challenge to meet their needs through programming and education. Again this year, PFNCA is sponsoring a fundraiser at National’s Park on Sunday, September 24, 2017. Gates open at 8:30 am. Please consider joining me as I Walk Off Parkinson’s! Please consider, too, a contribution to this worthy organization. Your donation can be made electronically from the donate button on my page or by mailing your donation directly to PFNCA, 8830 Cameron St., Suite 201 Silver Spring MD 20190. Phone: 703.734.1017.
Slowing How Parkinson’s Impacts People and building Community
PFNCA is a leading organization providing programs and services directly to those impacted by Parkinson’s. While there is no cure for PD, research tells us that those diagnosed with it can take steps to slow how the disease impacts them. PFNCA provides exercise, communication and education programs throughout Virginia, Maryland and Washington, D.C.
PFNCA improves the quality of life of those impacted by Parkinson's disease, their care partners, and families, and fosters a sense of community to ensure that no one battles this disease alone. Simply stated, PFNCA strengthens the physical and emotional health of people impacted by Parkinson’s.
“PFNCA helps people take control of their lives.”
A man with Parkinson’s who participates in PFNCA’s programs recently talked about how when a person is diagnosed with PD, they have many questions and feel that there is not much they can do. PFNCA is an organization that provides resources and information to help navigate living well with the disease. As he so eloquently stated: “PFNCA helps people take control of their lives.”
Walk Off Parkinson’s
Walk Off Parkinson’s is the name of PFNCA’s community fundraising and awareness walk, but it is so much more. It is a rallying cry to focus on how those impacted by Parkinson’s can take steps to slow how PD affects them. Whether it is a practical mindset of regularly exercising or a philosophical one that a person can enjoy life even when faced with challenges, Walk Off Parkinson’s is a way of life.
“I walk off Parkinson's by recognizing that positive actions and encouragement lead to happier possibilities and energy.” -- Ann
“I Walk Off Parkinson’s with the support of amazing people – my husband, family, friends, my PFNCA support group, personal trainer, therapist, psychiatrist, masseuse, neurologist, dentist, those in my book group and my colleagues at work. I am determined to work successfully and fully for many more years. To everyone out there with Parkinson’s who is working, you can do it too! It is very significant for people with PD to have a comprehensive web of support in order to live life fully and have hope for the future.” --Mary Lou
Your Help Is Needed
We need your help to continue this important work. Funds raised will be used to maintain PFNCA’s current exercise, communication and education programs, and allow PFNCA to serve more people.
Please support me in my efforts to help those facing Parkinson’s. I am proud to tell you that PFNCA was recently named one of the best small nonprofits in the Greater Washington Region by the Catalogue for Philanthropy. Additionally, more than 81 cents of every dollar raised supports programs and services provided by PFNCA.
Together, we will Walk Off Parkinson’s.
Please make a tax-deductible contribution today. You can make a donation now by clicking on the donate button or you can send your donation payable to Parkinson Foundation of the National Capital Area (PFNCA) to:
Parkinson Foundation of the National Capital Area
830 Cameron St., Suite 201 Silver Spring MD 20190
Please be sure to list my name and "Walk Off Parkinson's" in the memo line.
PFNCA is not affilaited with any of the many national organizations that focus on Parkinson's. Your support provides for a powerful and vibrant community helping those with Parkinson's live well.
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